50/50 chance sounds good to me!

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Written on 9:27 AM by gracefully discovering:



Our visit to Texas Childrens hospital was the best visit we have had during this whole pregnancy. We left with a peace of mind and a little more hope than what we walked in with. This was actually one of the first visits that I didn't leave out crying!!
Anyway, we went for the Echocardiograph which took an in depth look at Fat Fats heart. They examined her heart for about an hour!! Which was quite amazing, not that we knew what they were looking at...but it was entertaining to see them playing in there for that long. The results showed that she does have a Hypoplastic heart but that it's not as severe as we had thought. She explained it to us like this: there is a spectrum of hypoplastic hearts. The worst case is black and a normal heart is white (skinny has white), Fat Fat is borderline between gray and dark gray. There is some blood flowing through the left ventricle, but the aortic valve and mitrovalve are small. She believes that there is a 50/50 chance that the aorta and mitrovalve will grow some more and she could move to the light gray/dirty white part of the spectrum...or it could not get better and she can move to the black part of the spectrum. This was good news to us because we thought she was already in the black. We go back in 6 weeks to get another echo done to see if there is any growth to her aortic valve and mitrovalve. She did explain that being borderline which is where she is, is worst than being in the black area. Because the left side is working a little bit, it will start pulling on the right side to do some work, which will in turn make the heart work too hard and it'll be harder to fix. She said we want her to move closer to the white, but if it's in Gods will for her to have a hypoplastic heart, then we want him to move her closer to the black- because it will be easier to try and fix. It was rereshing that she was spiritual...she talked a lot about prayer and miracles and faith...which seems to be rare with medical professionals, especially our twin specialist! But she said that we should pray for very specific things- just like the word says. So we are praying that her left aortic valve and mitrovalve grow over the next 16 weeks of my pregnancy so that she has two working ventricles!! If this happens, she will still need surgery but it won't be nearly as bad as if she goes to the black or stays where she is.
One thing for sure is, this little diva in training is a fighter! She is already kicking her sister like crazy in there and she is taking up all the space. Seems like she has a very strong personality and she won't give up easily!! She doesn't have a clue that she has a special heart because she is so active and full of energy in there already!! The Doctor must have said 10 times that she was a very active baby!!
Oh and you know how we call her Fat Fat and some people have an issue with that... But her being so ahead of my pregnancy could possibly help her! The Dr said that most babies with heart problems are smaller- but since she is a big baby, she will be stronger and it's a positive in helping her beat this. So I'm gonna keep calling my precious baby girl fat fat while she is in utero and then I'll cut it out once she gets here!! LOL.
Tomorrow night our family and friends are having a prayer conference call to pray for Fat Fats heart. So wherever you are at 7:30/6:30 central time please take a few minutes to pray for our baby. I am just so overjoyed with all of he love and support that we are receiving that all I can say is thank you very much!
By the way...I slept through the night for the first time in about a month!!

I have pics to put up that we took at Texas Childrens, but I'm blogging on my phone and they are on my fancy Nikon hat my boo got me for Christmas. I'll put them on when I get to my computer.
Keep us in your prayers!!!





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