On the way to step down!!

Written on 6:32 PM by gracefully discovering:

Baby Nia is doing amazing! It's been 5 days since her surgery and she has not had one single complication or set back! Today they removed the last of her tubes and lines...so she is free of all support!
She is now being fed my breast milk through an NG tube and a supplement through an IV...but other than that...this little feisty mama is doing it all on her own!
The Doctors said we may be going to step down tomorrow or Monday.
Step down is the unit right before she goes home! She will have her own little room and we will be able to stay with her....even Naomi. Naomi hasn't seen her since the day of the surgery. I'm pretty sure they miss each other. I can't imagine how they feel...I wish I knew. It has to feel pretty weird to be separated from someone that you have been with everyday all day for 9 months. But they will be back together again and I can't wait!
I really can't wait to see how they interact with one another and really get to know their different personalities. From what we can tell already- Naomi is the nice, calm and pleasant one...who just chills and wants to be fed and changed...oh and held! I hope she isn't becoming spoiled...but I think she is!!
Nia on the other hand is a little..well no VERY feisty and doesn't want you touching on her...and if you do- she will surely kick you or smack your hand away quickly! But I think her strength and feistiness has gotten her through this surgery and recovery- so I WILL NOT COMPLAIN!

I wanted to say thank you very much for all of the prayers that everyone has been sending up for our family. It's amazing that people who do not even know us- are praying for us. God is good and He loves when we come together to give Him the glory for his good works! We are definitely blessed beyond measure. I was telling Nick that I feel like this is too good to be true. That she is recovering so well without any bumps in the road (thus far). It's like we/I expected the worst....for it to not be this easy. But when we pray and put it all in the hands of the Lord...and praise Him before it's even done...He will make it this easy...just to show us what He can do. From the beginning...well not the very beginning...but after I accepted Nia's condition and stopped being mad at God for "doing this to us"...I have said that God's will will be done...whatever that is. And is seems like His will is for our baby girl to recover and come home and beat the HLHS like many other special heart babies. I know it's only 11 days out...but I feel good about it and I am gonna continue to believe that whatever His plan is for her- it will come to pass.

Posted in Nia |